Rose Rose Rose

good to hear from you!

we most certainly did help each other, you were there for me in my dark days of being newly diagnosed .. you told me to pace myself, a lesson we all have to learn and you were there for each new drug i was so scared to start on.

my Hubby is good, he retired just over a year ago after 45 years in the job and he is loving it, he keeps fit and does a 3 mile walk most days if we are home, my Daughter is fine very settled with her boyfriend of 5 and half years, they bought their house 3 years ago now. no Grandkids yet cos they just can't afford it, house came first. glad your two are fine.

i really admire the way you're still working, you sure have had to battle to keep going on, i hope they are sympathetic to you now, remember when you had visits at home from them.

you're a meer youngster turning 60, i turned it last year and hated it! now 61 is looming ahead

sorry to hear you've got Fibro now, you've had a rotten battle to get properly diagnosed and meds to suit. hope Methotrexate helps you, i think they do like us all to take it whatever else we take long with it.
i take BP tablets, Cholesterol as well.

my fatigue is the worst part for me .. do you remember i am not a good sleeper and i know that plays a big part in my fatigue, i feel a lot better if i have a better night. but that's always been me with my sleep pattern since my young days, so accept it now, although if you remember a higher dose of Methotrexate really did affect my sleep and gave me awful dreams when i wasn't even fully asleep, so been on 10mg Methotrexate for about 3 years now, and won't go any higher again although hopefully don't need it.

i do think of you often, i try and look in most days on my little tablet .. but i can only post on my Computer, too much hard work from the tablet.

hope you're not suffering with the floods down in Somerset, we normally go your way in April, well Wiltshire but have decided to go over to the Isle of Wight for a little break.

take care of yourself Rose,
with love
Suzanne xxx

He'll Suzanne. And Anne and others.

Great to get your news and so pleased you are doing well. Gosh a 3 mile walk by your husband. Oh I wish that I could do
That ! , !i bet you as well. Sorry to hear that you have to use a wheel chair sometimes. I use a stick as I do appear to fall quite a bit
My ankle or knee appears to give way. Hit my head quite a few times and have a few bruises.

Regarding my work they still do come to my home because I paid into a perm health policy with work. However, not since
Last June, and I am afraid it did not go very well for me I felt very intimidated. . . I have been off since mid November but
A catch up meeting about my sickness was meant to be last Thursday but they cancelled at the last minute and have not re arranged.

The wrath down here is dreadful. Poor poor people although I do live at the sea side luckily we have been free from
Flooding, however it is just 5 miles away from us where all the villages are flooded out and the special pumps been brought
In from holland. It is awful you cannot believe that there are whole villages /hamlets deserted and the water up to nearly there first floors and some of them since before Christmas it is quite disgusting. I know Berkshire and Surrey have flooded with the Thames
Poor poor people.

Well I should not be doing this whilst in bed, should I. I am on my I pad which I treated myself to last September. I
Love it . It does not cease to amaze me.

Nite. X x

Goodness the wind outside here now. We have lost 1 fence already. . . .

Hi Sophie, I am in a similar position to you. Took nearly a year after anti tnf was agreed
for me to start Cimzia due to various problems. After a couple of months ( when I was
just getting use to the syringe!) my consultant decided I should change to Humira. She
felt Cimzia wasn't working as well as she wanted & also, I think as she was leaving the NHS
she wanted to get things arranged. I had to have a 10 week period between stopping
Cimzia & starting Humira & my first injection is due today - I am feeling quite apprehensive!
A nurse should be coming shortly to show me how to use the pen. Funny thing is, about 5 weeks
after stopping Cimzia, I had a 2 week period when I felt really well. Perhaps is would have
worked if I had taken it longer, however I did have a slight allergic reaction every time I
injected. I take MTX & Hydroxychloroquine as well.

Good luck with everything. This is a great place to ask questions & just read about other
people's experiences.
Take care,
Jayne x